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Early Onset Alzheimer's Disease
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| <sandra>
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Senior Member |
This article is interesting and holds hope. My only thought is how to get your LO to want to go this or any other test for AD. I know that my husband just by the implication that his family has too many AD cases, is soooo scared that he would refuse anything that might test for AD. If he would only feel so strongly about colon cancer...... his father died from that.
I think that the reason that many of these early test do not "work" is that many possible AD patients are still entitled to their rights and can say NO. Not because they do not want any testing done but because they are afraid of what the results will bring. My husband will not even discuss anything involving AD research or testing ever since he has experienced what his mother has and is going through. I can't say that I blame him. It has been a very humiliating experience. It's better to live in denial than accept the inevitable. even if that can be helped or delayed or possibly halted. There will be no cure as long as AD is in control. What is the alternative? Force our LO's to under go tests that they are refusing even if it is for their own good............. It's the stigma that also has an effect. Who wants to think that it could be them???? there are very few celebrities that have outed themselves. It usually only happens because their absence is known. There should be no shame in this disease. Yet there is. Can anybody change that? Until there is a "cure" it isn't going to happen. Kindda like a double strike against the afflicted. It makes them work twice as hard to cover their symptoms. AND THEN IT IS TOO LATE FOR ANY TREATMENT THAT COULD HELP WHAT THEY AND WE ALREADY FEAR IS INEVITABLE. I know I would deny it till I couldn't deny it any more. The best that I could hope for is for a CG that will care for me and not have any ulterior motives. Secondly I would hope that my family isn't in a rush to collect on what I have in life and will assist my CG with my care. Thirdly I would like to think that if my CG needs help it will not force placement in a NH. I would like to believe that all the money that I have paid throughout my life time in taxes, insurance etc will be used to keep me in my own home and provide help to my LO. Untill that happens I don't think that I could encourage any LO of mine to admit that might need help and then I would encourage them to keep it a secret........ (OK I might encourage my mother but that is not for the reasons that I should..........) This disease $~@*$ PERIOD. Everyone suffers. espescially those that have to watch it. If there were a physical deformity, in the case of AD, the brain would be a big gapping hole so that everyone could see that it is not there. BUT with AD those that are not there 24/7, those that are not capable of understanding how the mind works and what it can do when it is shutting down do not see that gapping hole forming until it is too late. Too bad that our insurance carriers have made many diseases shameful when they should not be. My dream is to die from something that is tangible, the thought of losing my mind (again) is not possible. I would deny until I had no clue.......................... Jumping off of my soap box and hoping to make a change without making anybody realise that I might just be insane. If I could only be insane and not realise it, now that is a thought or would that be a choice. How do I lose my conscience and not have it come back????? willingly????? May the frog have mercy on my soul. Power to the puppets and peace to all people. |
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The ElderCare Forum
The ElderCare Forum
Early Onset Alzheimer's Disease
NEW ALZHEIMERS TEST
