|
Go
|
New
|
Find
|
Notify
|
Tools
|
Reply
|
|
|
Junior Member |
This is my first time on. The neurologist has diagnosed my husband, age 43, with dementia, probably frontal lobe dementia. My husband has had all the tests - mri, bloodwork, lumbar puncture, etc. They tried him on an anti-depressant for six weeks which only made him worse. My husband and I are convinced he's not depressed. The neurologist sent us to a memory disorders clinic at a respected university. The dr. there said he wasn't ready to concur with the neurologist here bcs. he said he needs more information. But yet he didn't really get our whole story. I'm starting to see how frustrating all this can be - to get a diagnosis. Now my husband will get neuropsych testing. I don't know how helpful that will be, but we are jumping through the hoops.
My questions are - has anyone heard of someone getting eoa at the age of 43? Most people posting seem to have loved ones who are at least in there late 40s when diagnosed. My husband does have both memory and personality changes, but he is responding well to razadyne. It seems like he could have either ad or fld. Does the fact that he is so young make it more likely that he has fld? Also, he has no relatives that had/have eoa. Does that mean that more likely he has fld than eoa? I am thankful for any information...... |
||
|
Senior Member |
Question: I may be wrong so anyone jump in and correct me. I thought that there is no "real" test for AD....just the symptoms and the real diagnosis cant be made until the person dies and an autopsy is done.? How do they know a person has AD??? I know it may sound like i'm just stressing but since my granny has it and her aunt had it and i seem to be losing my mind sometimes i wonder if i have EOAD?? When/if i ever get insurance again I want themt to test me immediately!
"Procrastinate now!! Don't put it off!---- Ellen Degeneres |
|||
|
|
Junior Member |
Hi Janie,
My name is Tracy and I was diagnosed at the age of 38 in 2002 with EOAD. I am now 41 and my neurologist is now pointing towards FTD I think. Ihave done well on Namenda and Exelon. I wrote a book that chronicles our journey to getting adiagnosis at a young age and how it affects the family. It is called Young Hope. I would like to invite you to my support group as well: www.health.groups.yahoo.com/group/dementiarescue I hope that knowing you are not alone helps. Feel free to join us! Tracy Tracy Author Young Hope & I Remember When |
|||
|
| <May>
|
I read an article that the youngest to be diagnosed was 23.
|
||
|
Senior Member |
I was dx with AD at age 57.
Lynne |
|||
|
|
Senior Member |
Welcome to the board....I am a newbie myself.
My Mom was diagnosed at 55, although she exhibited signs several years before then. Yes, it's definitely possible that, even at that young age, it could be EOAD. I have someone in my Yahoo support group, and he is 31 and just diagnosed. Breaks my heart! Again, welcome! Cat Early-Onset_Alzheimers_Caregivers_Group-subscribe@yahoogroups.com Visit my website: www.geocities.com/kittycat13132004 www.freewebs.com/kittycat1313 Proud member of Alzheimer's Art Quilt Initiative - www.AlzQuilts.org |
|||
|
Senior Member |
Birdie, how's it going? Any further testing yet for your husband? I hope the two of you are doing ok. Please let us know when you can.
 ~ Janie ~ |
|||
|
|
Senior Member |
Hey again, Birdie! I searched on this very site and found quite a remarkable amount of posts. We "used" to have an extremely active group of EOAD caregivers. If you click on the link below, and follow down and read through all the topics, you'll see so many of the postings from spouses who were cg's to their affected loved ones. http://eldercare.infopop.cc/eve/forums/a/frm/f/8306025151 (This, actually, is where YOU posted your topic as well, so you "may" have already read them.) If so, I apoloize. Just scroll on down; there are three pages of posts. I'll look again for some more of those sites I mentioned. ~ Janie ~ |
|||
|
Experienced Member |
Hi birdie, About 5 years ago my wife was dx as dementia most likely EOAD. She was 51 but started having problems years before I got her to see a doctor. While it is important to get the best diagnosis so your husband is getting the proper treatment - it takes a lot of time. My wife's diagnosis has changed several times. Your doctor has done you a favor by sending him to the specialist. In our case my wife had some medical problems which lead us to the Cleveland Clinic. We found out she has a form of Lupus causing her blood to be too thick. She had many small strokes which caused her dementia. I guess all I am trying to say is that you are on the right track. People don't always fit the "slots" that the doctors try to place them in. I am beginning to think there is no 100% diagnosis of EOAD except in hindsight. Try to hang in there - a lot of adjustments will have to be made but there is still a life after your LO is diagnosis with this disease.
Don |
|||
|
|
Junior Member |
Thank you guys for your words. Janie, I would love to know of the websites you mention re EOAD for someone as young as my husband. Thank you so much for your kind words.
|
|||
|
|
Senior Member |
Birdie, hi and welcome to the forum. Actually, just a few days ago I was doing some research on EOAD. I found a LOT of sites and one of them was being run by a young woman who was diagnosed at the age of 30! Very, very sad.
Gwen, it is wonderful to see you posting again. I think you made a valid point when you said your husband had been injured and THAT is what started the onset. I had no idea of all the trials the two of you have been faced with. My sympathies, Gwen. Thank you very much for posting. That is what makes this family so wonderful. We all support one another. ~ Janie ~ |
|||
|
| <gwen>
|
|
||
|
|
Senior Member |
EOAD happens below the age of 65 to anyone.
Lynne |
|||
|
| Previous Topic | Next Topic | powered by eve community |
 | Please Wait. Your request is being processed... |
|
|||
| Site | The ElderCare Forum | ||
| Servlet | eve2da013 | ||
| Version | 1.2.22 build 9062 | ||
| Module | Forums 4.0.3 | ||
| Stylesheet | "ElderCare Forum Style" | ||
| Wordlet Set | "Default Wordlet Set" | ||
|
(c) 1997-2008 Prism Innovations, Inc. All Rights Reserved