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Junior Member |
Well, this is my first post. I am not sure how long or detailed it should be, I just know that I am at my wits end. Long story short or maybe not so short.
Mom is 82 and still lives alone. Dad passed away 4 years ago. Mom was always very sharp. informed, took care of business, care for ill father, very independent. All this changed starting about 2 years ago. At first small indications of memeory problems that have now progressed to not being able to repeat conversations or remember task that were done only minutes ago. Up until two weeks ago I have handled all of her affairs, care, doctors appts., taxes, bills etc. Had her in my home for 3 weeks in June with back problems. Had to leave to go to NY, mother-in-law was daiagnosed with breast cancer and scheduled for surgery. At this point I called my brother and "asked for a favor" in that he see about her while I was away. That was 2 weeks ago. FINALLY he understands what I have been trying to tell him for 3 years. I truly believe she has alzheimers. Am now at the point where I know something has to be done. I have talked until I am blue in the face to her about in-home care, moving closer to me (she is 2 hours away), moving in with my husband and I (although at this point I do not see that as an option) She says she does not want to live with anyone, several months ago I hired and agency to have someone check on her and after the third visit she called and "fired" them. Said she was not going to have her daughter run her life. It had gotten to the point that my brother feels we should force the issue. I feel she will surely delcline very quickly and die if we do. GUILT, GUILT, why do I feel so guilty when I am only trying to help her. It has come to the point that she cannot make the decision on her own because her memory will not allow her to recall our conversation for more than a minute or so. Where to start?? I have a call into the local alzheimers assoc. office to speak with someone there. I know what needs to be done, but the thought of it almost paralyzes my thoughts. I am a nervous wreck. Where does one start to dismantle the remains of a 60 year marriage and the accumulation of 45 years of belongings in a home. So much sentimental stuff. It all seem so overwhelming. Seems there if just enough left of her mind to express the sadness and reluctance at making this type of change. Oh how I wish sometimes her and my father's life had been different. They were never really social people, and the friends they did have have passed or are in as bad a shape. She has no interest in visiting outside the home, in activities such as senior centers, church, nothing. Refuses to have meals on wheels, or any outside help at all. One day rolls into the next and the next. Her only lifeline has been my husband and I and now FINALLY a little help from my brother (who lives 2 minutes from her) and told me last evening he is ready to jump off a bridge. My reply "welcome to my world, now you know what I have been dealing with for the last 3 years alone!!!! (with the exception of my husband who has been very supportive of my constant road trips to see about her, having her in our home for extended visits, etc. Geez this has turned out long. I know you all have heard it before time and time again, but maybe there is someone out there who can offer some advice. I know the people at the alzheimers assoc. will be helpful in providing information, but would like real life info from those who have dealt with it or are now dealing with it. Any replies would be greatly appreciated. I cannot seem to overcome the feelings of guilt at having my own life. I know she and my father made sacrifices for us throughout their life, but at age 50 I feel my husband and I should be enjoying some of the best years of our life, our children, our grandchild, travel, etc. I do not recall my parents giving up their entire life when my grandparents were unalbe to care for themselves. One grandmother lived in a ladys home the other was placed in a nursing home (soemthing I have always promised my mom I would never do.) Thanks for listening.......Nancy Velletta |
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Senior Member |
I dont mean to step on anybodys toes here so take this just as a heads up..
This is an old thread that was put into the wrong category when first posted. This is for Classified listings only. If you would like to post go to the homepage here: http://eldercare.infopop.cc/eve?a=cfrm then pick from the topics that best suit your needs...New Caregivers meeting room, Daily challenges ect. Thank you and happy posting! ********************************************** Well, butter my butt and call me a biscuit. |
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Junior Member |
Nancy,
I can understand where your coming from I'm 54 my mother is 87 and they don't get any younger. My husband and I had planned on traveling the US when we hit our 50's but due to an untimely accident my mother fell broke her hip and that change everything. There will be days that you think you are going to go crazy but you won't. Have your mother checked for Dementia if you can because if she has Dementia you need to get a durable power of attorney and have her sign it for her own protection. An if your brother isn't helping then have her put her house in your name only and anything else of value so he can't get any of it. I have a brother & sister and they live out of state but when I need a vacation , do they help?? NO!!! Do they help pay to have someone watch your mother for a wk to let you get some R & R NO!! Last yr. it cost me $400 to pay a lady to take mom for a wk. This yr it's $675 and I about shit. I called my brother and ask him to pay half and his wife said that it was only fair, so they are helping this yr. The rest of the yr there is no other help other than my husband. I no it's hard for you an your husband because it's like having children all over again, no quality time for yourselves and each other. See about getting your mom on Aricept it's a drug that is use for people showing signs of early Dementia. If you don't get her on it now it will be to late because if won't work after your mother gets worse. Another thing. There are adult day care centers that will keep your mom up to 8hrs. a day and they charge according to how much care your mother would need. I wish you luck and your husband. We all could use some. Nymoway, AKA(Janet) |
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Senior Member |
Guilt is a part of caregiving. I feel guilty if Mother's life isn't perfect despite the fact that she's 86, has had several strokes, a heart bypass. a broken wrist that didn't mend right, and can't walk. She has been in pretty good shape mentally, but my aunt had Alheimer's and my cousin just had to put her in a nursing home after she wandered around at night and forgot to turn off the burners on the stove. My cousin took care of her, but we all decided that a nursing home was the thing to do when my aunt got really bad. Some types of Alzheimer's are slow acting and my aunt basically lost her mind over a 10 year period before she finally died. You must enlist your brother. Use guilt if necessary. One thing I learned. I went to talk to Thea, our pastor at the Unitarian Universalist church here in Tahlequah, early on and told her I felt guilty because Mother had done everything for me including changing diapers. Thea asked me how old Mother was when I was born. She was 27. I was 54 at the time. I'm 59 now and realize that I can't possibly do all that a 27 year old could do. Also Mother wanted me as a baby. I didn't want Mother to be a baby when I was in my 50s. I didn't ask for this. And neither did you. So, let the guilt go and do what you can and that's it. Email me if you want. I recommend the Alzheimer's forums here at this site. They know the score. |
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Senior Member |
Nancy--I think you posted on the wrong forum. Try "I, Caregiver." I am in Oklahoma too. Tahlequah. Where are you? Luckily, Mother doesn't have Alzheimer's, but I've been taking care of her for 5 years. I think we Okies should stick together, so let me hear from you.
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