Hi everyone,

My mother is still visiting with her sister in Manitoba, and they're having a lovely time. I'm enjoying my break. Devastating news in a phone call this morning though. My aunt who has had mysterious ailments for a few years now has just been diagnosed with Parkinson's. There were 3 sisters in their big family. The third is gone already, taken by Alzheimer's in December '99. A brother also died of AD this past summer.

I want to do some research. Can anyone point me to a website as a good starting place for learning about Parkinson's?

I don't know what else to say. I'm angry and sad and everything all rolled into one. The two dears have no idea how serious it is, just that it isn't good. It breaks my heart for them, what's ahead. But I'm grateful my Mum was there to help cushion the news.

Thanks for any help you can give. Rita

Margarita, First is to be sure auntie sees a good neurologist.Then make sure they give the medicines that will make a difference wioth the parkinsons.I say this as my husband has Parkinsons.I have discovered with the proper meds the one afflicted can lead a good life.Excercise is very important.When they are taken to any hospital, make sure a family member is there to prevent any change in regular meds.
The sites posted below give good information.My husbands decline has happened because of failures of a doctor to take heed to my warning about an antibiotic.Good meds, excercise and stimulation play an important role.

I know this post if from some time ago, but I hope you still read here.

This link is for the Parkinson's Disease Forum at MGH. It's an active forum with a lot of good information and support.

These are some links for info from a post over there:

here is the site for American PD Association
http://www.apdaparkinson.com/

A teaching Presentaion
http://www.dna2z.com/projects/PD/

American PD Association
http://www.apdaparkinson.com/

National pd foundation
http://www.parkinson.org/

PD Foundation
http://www.pdf.org/

Parkinson's Web
http://pdweb.mgh.harvard.edu/

NEUROLAND DIRECTORY PAGE
http://www.neuroland.com/default_old.htm

Parkinsons Disease Menu (the old pd webforum or archives)
http://neuro-www.mgh.harvard.edu/forum/ParkinsonsDiseaseMenu.html

Personal Profiles http://neuro-mancer.mgh.harvard.edu/ubb/Forum71/HTML/000054.html

Some Pictures Of Us
http://neuro-www2.mgh.harvard.edu/mgh_images/kris/

Sandy's Parkie Porch
http://www.plwp.org/sandys_parkie_porch.htm

WE MOVE Web Site: resource for movement disorder information
http://www.wemove.org/

This web site is about with Parkinson's Disease; what it is, what you can do to fight
its effects; and how the Internet can be used in the battle against PD.
http://james.parkinsons.org.uk/

Functional and Stereotactic Neurosurgery Parkinson's Disease Support
Massachusetts General Hospital Harvard Medical School http://neurosurgery.mgh.harvard.edu/pd-suprt.htm

Parkinson's Action Network http://pages.prodigy.com/VRGS59A/
email: ParkActNet@AOL.com

"James", a site about Parkinson's Disease http://james.parkinsons.org.uk/

Drug interactions and information interfaces. http://www.drkoop.com/hcr/drugstore/interactions/

Parkinson's Disease Foundation - New York NY http://www.parkinsons-foundation.org/

Parkinson's Disease Index
Wake Forest University School of Medicine http://www.wfubmc.edu/surg-sci/ns/pd.html

World Parkinson’s Disease Association http://www.wpda.org/

PD INDEX: An Index to Parkinson's Disease Information on the Internet http://www.pdindex.com/

The Parkinson's Recovery Project
Dedicated to dissemination of information regarding Parkinson's Disease treatments which use techniques of Asian Medicine http://www.pdtreatment.com/

Parkinson's Disease Book Store http://www.wellnessbooks.com/parkinsons/

http://neuro-www.mgh.harvard.edu/

http://neuro-www.mgh.harvard.edu/forum/

here is the site for American PD Association
http://www.apdaparkinson.com/

A teaching Presentaion
http://www.dna2z.com/projects/PD/

American PD Association
http://www.apdaparkinson.com/

National pd foundation
http://www.parkinson.org/

PD Foundation
http://www.pdf.org/

Parkinson's Web
http://pdweb.mgh.harvard.edu/

The Parkinson Archive Treasures
http://www.parkinsons-information-exchange-network-online.com/archive/patp.html

an interesting and informative on PD on the webmd.com site. It shed a bit of new light on certain things for me and is quite comprehensive, the URL is:
http://my.webmd.com/content/dmk/dmk_article_40066

The Hoehn and Yahr Staging of Parkinson's Disease

The Unified Parkinson Disease Rating Scale (UPDRS)

Schwab and England Aivities of Daily Living
http://brain.mgh.harvard.edu:100/pdstages.htm#HoehnandYahr

What is Parkinson's Disease?
http://healthlink.mcw.edu/article/922583015.html

Diagnostic Criteria for Parkinson Disease
http://archneur.ama-assn.org/issues/v56n1/full/nsa7701.html

DIFFERENTIAL DIAGNOSIS OF PARKINSON'S DISEASE AND THE PARKINSONISM PLUS SYNDROMES
http://www.ionet.net/~jcott/homepage/archive/091.html

Common imitators of Parkinson's disease: http://php.silverplatter.com/cgi-bin/physiciansopinion.pl?opinionfile=/A90470.htm

Parkinson's Disease and Sleep http://www.sleepfoundation.org/publications/sma2.4.html#1

Algorithm for initiating treatment in early Parkinson's disease http://www.neuroland.com/move/parki_med.htm

Parkinson Disease, the Effect of Levodopa, and the ELLDOPA Trial
http://archneur.ama-assn.org/issues/v56n5/full/nnt8325.html

INSTRUCTIONS FOR PATIENTS WITH ORTHOSTATIC HYPOTENSION (LOW BLOOD PRESSURE WHEN STANDING)
http://miso.wwa.com/~claudec/shydrager/instruct.htm

Delirium in the Elderly
http://www.mmhc.com/cg/articles/CG9903/shua_haim_cg.html

PD articles from SAN DIEGO PARKINSON CORPORATION:
http://www.sd-pc.com/articles.html

http://www.druginfonet.com/

http://www.macalester.edu/~psych/whathap/UBNRP/parkinsons/webpage.html

http://www.drweil.com/

http://www.parkinson.org/ma3.htm

This website has been created to help educate people who have problems with, or children who have, drooling (sialorrhea), or may know someone who has this problem. http://www.droolinginfo.org/

Scientific Publication Abstracts/Technical Presentations http://www.neotherapeutics.com/technology.html

Parkinson's Disease Caregivers' Community
has sections on:
Caregiving Skills | Discussion | Chat | Reading List | Ask an Expert | Shopping
http://www.webofcare.com/

Info on Corticobasal Degeneration http://www.mediconsult.com/mc/mcsite.nsf/conditionnav/parkinsons~sectionintroduction

Here's one that might interest all..when you get there type in Parkinson's
http://clinicaltrials.gov./ct/gui
lil

Here's a similar one...very good
http://www.centerwatch.com/

http://wwww.aparkinson.com/

http://www.stic.net/users/brett/page3.html

this site deals with dystonia

http://neurosurgery.mgh.harvard.edu/pdstages.htm

http://www.parkinson.org/pdedu.htm

http://www.parkinsonsinstitute.org/

http://www.ornl.gov/TechResources/Human_Genome/home.html

http://www.newcountry.nu/pd/

http://www.pbs.org/wnet/innovation/show3/html/animation5.html

http://www.ninds.nih.gov/healinfo/disorder/parkinso/pdhtr.htm

http://dna2z.com/projects/PD/

http://www.parkinson.org/offers
coupons for drugs &c. NPF (whose site this is) also has a search engine 2 find support groups.

For information on dealing with the SSDI maze: http://www.disabilityfacts.com

World Parkinson'ss Disease Asso.
http://www.wpda.org/links.html

SURGERY LNKS
http://www.parkinson.org/mdsurgery.htm
http://parkinson.org/pdsstudy.htm
http://www.nyneurosurgery.org/Adult/Movement/stndbs_implantation.htm

some sites to check your meds on
http://img.intelihealth.com/

http://www.rxlist.com

Medical Mailbox
Get the latest news and developments on many neurological illnesses and conditions delivered directly to your Email-box for free!
http://www.medicalmailbox.com/neurology.htm

Please Note: This Is For Those Who May Be Interested
Christians With Disabilities
http://amazinggrace.org/

Resource List
http://amazinggrace.org/resource.html

Includes
STATE REHABILITATION RESOURCES
- Chronic Pain
- Blind
- Canine Services
- Christian Disability-Related Links
- Diabetes
- Magazines
- Medical Supplies
- Financial Aid
- Research and Drugs
- Disability Devices and Related Help
- Daily Living
- General Health and Information
- Other Links
* 1,400 Disability Links
http://amazinggrace.org/disablinks.html

This website lists new medicines currently in clinical trials. Information on medicines for specific diseases (there are several listed for pd) are downloaded in acrobat.
http://www.phrma.org/charts/neurochart99.html

On the exciting small molecule work on neuroimmunophilin ligands for PD and others I found NPF page(s) on this topic. Later now I realize that first are from 1996 and 1997.
http://www.parkinson.org/cure.htm

and a few Q & A comments at
http://www.parkinson.org/cureqna.htm

And here is a page from 7Jan2000 on GPI-1046
http://www.parkinson.org/amgen.htm

and Guilford Pharmacuticals page leading to the topic
http://www.guilfordpharm.com/fs_products_nf.htm

and scrolling to the bottom you can click the following to see a list of current publications

Neuroimmunophilin Publications

Dementia, lecture 10: Parkinson’s Disease and Dementia
http://www.unn.ac.uk/academic/ss/psychology/resource/py028/LECTURE10.HTM

Cells Found in Brain May Be Key to Nerve Repair http://www.nwpf.org/news/item990108a.html

Bioethics and Human dignity paper http://www.bioethix.org/resources/aps/cbmcomment6.htm

The center for bioethics and human dignity
http://www.bioethix.org/index.html

for those interested in the before and after images of patients having undergone surgery, to relieve some of the sympttoms of pd ...
http://www.rewiredforlife.org

DBS info:
http://www.medtronic.com/neuro/tremor/ask.html

Tools and other devices for PWP and others to travel more easily through the day. As of the date of this poost you can order a catalog. Later they will have the catlog on-line. The coi is North Coast Medical.
www.ncmedical.com/Catalogs.htm

www.drugawareness.org

THE PARKINSON'S ASSOCIATION OF WESTERN AUSTRALIA
Neurological Lotteries House
320 Rokeby Road
SUBIACO WA 6008
Phone: (08) 9381 8699
Free call (country) 1800 644 189
Fax: (08) 9382 1149
Email: pawa@cygnus.uwa.edu.au
http://www.quartec.com.au/parkinsons/
General Collection Resource http://www.noravc.com/parkinsons_disease.htm

World PD Association http://www.wpda.org/

Members http://www.wpda.org/members.html

Australia and New Zealand Health and Fitness http://www.seniorssearch.com/ssaus/s-health.htm

Encarta Encyclopedia '99 entry on PD
by Dr.Lieberman
August 1999
PARKINSON DISEASE INTRODUCTION
http://www.parkinson.org/encarta99.htm

http://clinicaltrials.gov/

Parkinson's Talk Radio
www.travelswithparkinsons.org

The person deserving the credit for putting that list together is "toadie" .. now know as "usedtobetoad" on the MGH PD forum.

ces