Hi I'm new here. My husband's mother has been diagnosed with Lewey Body Disease. We think she's had it for at least 3 years. Finally got her to a neurologist who told us about this disease. We can't seem to find out how this disease progresses. What happens to the person as the disease progresses? What symptons do we look for in his mother to know the disease is getting worse. I've ready this disease can last up to 4-7 years is that correct? Thank you for any information you can give us on the progression of this disease.

Jo53, you are fortunate to have a doctor who is aware of LBD.My husband had such and so many in the medical profession are ignorant to it.They view it as not important but they are wrong.The refernces posted is a good one.The symptoms are differnt the AD if they would take the time to observe and research.With proper medication the dementia does not progress that fast.Many of the symptoms remain the same.They become enhanced once in a while but they are not consistant.I was fortunate to have good doctors at the VA that listened to me.
One doctor told me I caught him with egg on his face when mentioning LBD.I wanted to tell him it looked like shit and not egg
Many with Parkinsons have LBD.
THE ONE THING YOU HAVE TO WATCH IS MEDS

Welcome Jo,

Here is an excellent article from WebMD about it to get you started.
http://www.webmd.com/mental-health/dementia-lewy-bodies

Stick around and some of our members with experience in LBD will probably add their advice.

This is a great group of people with the biggest hearts and tons of experience to share.
Know that now that you've found us you are not alone! Welcome!