Well my Mother Nadine died on August 20th of complications of Lewy Body Dementia. She was in the severe stage, and then fell resulting in multiple pelvic fractures. Once in bed she just slid into decline extremely fast. Within four days she was in hospice care and within a week she had passed away. When I call people to tell them, nobody has ever even heard of Lewy Body - so we are asking family and friends via the obit to donate to LBDA in lieu of flowers. Maybe they will get curious and read the website I refer to (www.lbda.org). And thanks to all of you for the support over the years. I am including a poem I found at random on the net. It touched me as being so meaningful for someone who passed from dementia,I am including it on my Mother's funeral service program. Here is is:

Memorywork
By Jack Riemer and Sylvan D. Kamens

In the rising of the sun and in its going down,
we remember them.

In the blowing of the wind and in the chill of winter,
we remember them.

In the opening of the buds and in the rebirth of spring,
we remember them.

In the blueness of the sky and in the warmth of summer,
we remember them.

In the rustling of leaves and in the beauty of autumn,
we remember them.

In the beginning of the year and when it ends,
we remember them.

When we are weary and in need of strength,
we remember them.

When we are lost and sick at heart,
we remember them.

When we have joys we yearn to share,
we remember them.

So long as we live, they too shall live,
for they are now a part of us, as we remember them.

Hannah, my sympathies on the loss of your mother. Thank you for sharing the poem. It is beautiful and so true.

Hannah, So sorry to har about your mom. I also did know know about LBD till I joined this forum. It is hard but your mom will always be with you in your heart. May the good memories help you through this difficult time

Hannah, I am so sorry.
May she rest in peace.
Too many are not aware of LBD.To me that shows alack of continuing to keep doctors informed as well as hospital personal.
The poem is beautiful.The words ring true.

quote:

So long as we live, they too shall live,
for they are now a part of us, as we remember them.

AMEN.



Wishing you peace of mind and heart.

{{{Hannah}}}

Hannah, my deepest condolences to you and your family. I'm glad your mom's suffering and struggles are over and hope that peace will fill the unpleasant memories in the hearts of all.
{{{{HUGS}}}}


Lighting a candle in her memory...
http://www.gratefulness.org/candles/candles.cfm?l=eng&gi=ECO

Hannah, The poem is so beautiful. Contributions to LBDA is a loving tribute to your Mother. I had not heard of LBD until I came here. My deepest sympathy for your loss.